Ethics Governance
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| Article - Abstract. To view full article click on the article title. | |
eMJA: The ethics of participating in research The ethics of participating in research. Annette J Braunack-Mayer MJA 2002 177 (9): 471-472 Simple statements of risks and benefits may not reveal the complexity of human responses to research participation In this issue of the Journal, Scott and colleagues (page 507) report on a retrospective study of family members' experience of participation in a previous study following their child's diagnosis with Ewing's sarcoma.1 The research is important because it casts empirical light on an ethical issue often debated in human research ethics committee meetings: how does research affect those who participate in it? Ethics committees can be very cautious about granting approval for research into sensitive areas because of concern about the impact on research participants. People participate in research for many reasons. They may feel an obligation to their doctor, they may not think they have a choice in the matter, they may hope or believe they will benefit from the research, or they may just wish to help others.2-4 Regardless of the reasons research participants may have for participating, the National Health and Medical Research Council (NHMRC) guidelines5 make clear that the primary duty of members of ethics committees is to attend to the "dignity and wellbeing" of research participants. Ethics committees focus, above all, on the risk of harm or discomfort to participants and on the requirement that participants make a free and informed choice to participate in research. Full Article: http://www.mja.com.au/public/issues/177_09_041102/bra10500_fm.html |
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2006 Ethics-Governance.com |
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