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| Article - Abstract. To view full article click on the article title. | |
eMJA: Predictive genetic testing in children Predictive genetic testing in children Fiona H Richards, Roslyn J Tassicker, Jennifer G R Kromberg and Barbara M Singaram MJA 2002; 176 (10): 507 To the Editor: We are writing to express concern about the article by Savulescu in the 1 October 2001 issue of the Journal.1 As social workers with extensive experience in the area of predictive testing for Huntington disease (HD), we wish to make the following points: The author fails to mention that specialist multidisciplinary teams with training and experience in all aspects of predictive testing (and associated ethical issues) are based in genetics services in every Australian State. Experienced counsellors in these teams can explore the subtle psychological processes that may underlie a parent's request for predictive testing of their child. For example, in the hypothetical clinical encounter depicted by the author, "Mrs Smith" may feel guilty that her children are at risk, and might be motivated by a desire to know that her children have not inherited the HD mutation from her. Through our work with adults who undertake predictive testing, we are acutely aware of the complex and subtle adverse psychological effects on the individual and on family relationships that often follow such testing. These effects are likely to be even more evident in families in which children's risk for an untreatable, adult-onset disease is known. The child's right to autonomy in making his or her own decision about testing for such conditions, when he or she reaches the age of 18, is supported in a number of guidelines, including the international guidelines for predictive testing in Huntington disease.2 These guidelines were formulated by experienced professionals and representatives of HD families worldwide — their wisdom in this matter should not be ignored. Full Article: http://www.mja.com.au/public/issues/176_10_200502/richards200502.html |
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2006 Ethics-Governance.com |
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